Update on Wil, doing some research

Sorry to ramble on about this, but I just need to talk. So I had a meeting with the EI coordinator today and she suggested I actually speak with Wil's teacher first. To not really mention SI, but to just ask her how his general behavior is in class. And to talk with her about how he is doing with potty training. She asked that I give her a couple days to look into whether we can get continued EI services and to see if he can get an OT consult through the school district. So last night I got online (because I'm completely impatient) and found that Colorado Springs has a Child Development clinic that specializes in SID. And an author of one of the well-known SI books works in Denver, only an hour drive from here. So at least I know I have some options. There is also a parents of children w/SID support group that meets at the library. So I called the clinic today to just see whether they take our insurance and I was told that I need a referral from Wil's physician first. Which seemed strange to me when I am willing to pay out of pocket. I explained to her that my ped wasn't so up on SI and that she sorta gave me the brush-off about it, so how was I supposed to get a referral. But she assured me that my actual ped refers kids to their office a lot. Hmm. Then she said that insurance (as in 85% of the time) does not covers SID. Great. Which brings me back to EI services now. DH says that we can pay out-of-pocket for the initial consult if we want a second opinion from the special clinic, which may be the way we go. So right now, although I feel like I'm getting somewhere, I still feel like so many people are looking at me sidways. The EI coordinator wasn't as helpful as I remembered. She kept saying things about my rights to have an EI meeting with Wil's teacher, blah blah blah. She sorta lost me. Anyhoo, that's the update for now. I'm going to email his teacher and give her a short version of my concerns. I really don't want to tell her too much in fear she will start labeling him. I'll let you know how it goes....

Thanks for letting me vent.........

Good job - keep doing your research and please keep us posted!

I'd definitely do the consult and then go from there. I know it took almost a year to get our insurance to cover Megan's OT consult. They would not cover the speech consult at all. We are still battling with the insurance company to have the right coding to get it covered, so I hope it happens. Otherwise we'll be going with EI through the school as well.

Ugh, that sounds so frustrating Karen. Hope it finally comes through for you!

I'm glad you're keeping on top of it.

keep on top of it bc they wont