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Mason's Mum	Posted: Mar 20 2006, 04:06 AM
New Member Group: Members Posts: 17 Member No.: 3,330 Joined: 22-February 06	Has anyone on here had to go through tests on there little ones for Cystic Fibrosis?? Mason has been a poorly baby ever since being born just constantly cold after cold and so on i have been getting so fed up with the doctors just pumping him with paracetamol and getting no where. anyway took him to the hospital and now they want to test him for cystic fibrosis???!!! i have looked it up and done research on it but just wanted to know has anyone else had this experience and how did things work out??? Just seems like its one thing after another and to top it off its took thins to happen for his dad to start caring about his son???!!! --------------------

kit_kats_mom	Posted: Mar 20 2006, 04:31 AM
Cary the Lemur Group: Members Posts: 8,080 Member No.: 135 Joined: 15-April 03	Gosh, that's no fun. What kind of tests are they thinking of doing? Katherine was really small according to the growth charts and we saw hormone people, heart specailists and I'm pretty sure we had her tested for CF. After all of that, they came up with nothing, she's just a small kid. Refresh my memory, what kind of tests are they thinking of doing? -------------------- Cary

amymom

Posted: Mar 20 2006, 05:18 AM

The kids!!

Group: Members
Posts: 5,710
Member No.: 1,308
Joined: 30-January 05

QUOTE (Mason's Mum @ Mar 20 2006, 07:06 AM)

Has anyone on here had to go through tests on there little ones for Cystic Fibrosis??

I have never had the tests done on my children. However, I used to work for a pediatrician who specialized in working with children with CF. Are they doing a sweat test? Usually that is the first test they do for CF. Then maybe genotyping. There are many, many advances in CF in recent years. Please let us know how he is doing.

When are the tests to be done?

--------------------

Anne Marie
Mom to Billy & Mary Beth
Wife to Lee

siblingtoolivia	Posted: Mar 20 2006, 06:42 AM
Bronze Member Group: Members Posts: 169 Member No.: 3,129 Joined: 17-January 06	Know about the sweat test, girlfriend's daughter had it done, had alot of breathing problems, turned out she had bad refulx and was aspirating into her lungs.....all turned out well. I guess the sweat test tests for the amount of salt in their sweat....high salt is a sign of CF?? Something like that.....in the end, she is three now and perfectly fine......she was always sick for the first year and a half....hang in there... Sending prayers your way. -------------------- Christine, wife to Dave 9/29/01, Mom to Olivia 6/7/02 and Baby to Be 12/28/06

carolyn	Posted: Mar 20 2006, 09:30 AM
Newbie Group: Members Posts: 8 Member No.: 3,432 Joined: 16-March 06	I don't know much about CF, but everything will be fine. You and Mason will be in my prayers. Let us know about the tests. --------------------

Mason's Mum	Posted: Mar 23 2006, 02:16 AM
New Member Group: Members Posts: 17 Member No.: 3,330 Joined: 22-February 06	Yes its the sweat test which they are doing had to wait 7 weeks for the appointment though its the 3rd May, they said that it will take a few hours to collect the sweat from him as babies dont tend to produce it is the same way we do...... To top it off Craig now wants to come with us which means me having to spend time with the man who has been the worse thing ever to happen to me Mason has been poorly ever since being born its cold after colds and he is also Lactos Intolerant will let you know how it goes xx --------------------

luvmykids	Posted: Mar 23 2006, 09:41 AM
Diamond Member Group: Members Posts: 19,113 Member No.: 3,038 Joined: 3-January 06	I'm sorry to hear all that, KUP.

ashtonsmama	Posted: Mar 26 2006, 03:03 PM
Unregistered	I'm so sorry you guys have to go through all that...never heard of tests on babies for CF. Good luck, you and your little guy will be in my prayers. (((((((((((HUGS)))))))))))))

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